Rare systemic inflammatory diseases: Experts meet for the fifth time in Münster
The international expert meeting on “autoinflammatory diseases“ took place in Muenster for the fifth time.
90 physicians and scientists from all over the world met in May this year to discuss advances in the research, diagnostics and therapy of rare inflammatory diseases. The international expert meeting on “autoinflammatory diseases“ took place in Muenster for the fifth time.
Rare diseases usually begin in childhood and take a chronic course with major risks and reduced life expectancy. Most rare diseases are genetic or partly conditioned, and they can rarely be cured. The most common symptoms of rare autoinflammatory syndromes are fever episodes, eye and skin symptoms, joint pain as well as headaches and abdominal pain. The affected children are massively disturbed in their normal development. It can lead to severe damage, such as deafness, blindness and renal failure. With the availability of new treatment options, many patients can be helped today. However, setting an accurate diagnosis, and thus an effective treatment, is often very delayed.
The rarity of individual disorders hinders both medical care of those affected and research to improve diagnosis and therapy. These particular challenges can only be overcome through cooperation of all experts. Therefore, the organizer of Muenster expert conference, Prof. Dirk Foell from the Department of Pediatric Rheumatology and Immunology at UKM, urges for further efforts: “in order to make further progress in this field, cooperation in international networks are necessary." For several years there is a great emphasis on autoinflammatory syndromes at the University Hospital Muenster (UKM) and the local medical school. Among other things, the national research network "AID-Net" supported by the Federal Ministry for Education and Research (BMBF) is coordinated from here.